Friday, April 8, 2011

Mole Hill into a Mountain

So yesterday, if you read my post, you heard me talking about the loophole that was going to take so much stress off of Derek and I... WELL, this morning, I thought that since we have been on the waiver list for over a year, I would call and check to see where we were on it... and comes to find out, Baker was taken OFF the list only 14 days after being on it. Never did I get a phone call, never did I get a letter, NEVER!!! Why might you ask? Well this is the funny part... The waiver is to help patients who can't care for themselves, both disabled and elderly. But Since Baker has a trach and a feeding tube, the would have to have a qualified person come into the home... Get this, the person would not EVER have to do anything to Baker... there job is to come in and clean (for elderly, they help bathe them). That's right... a qualified person would be required to CLEAN Baker's room or wash his clothes!!! Ha! Ha! Ha!!! So anyways, I told that women that I don't need a qualified person in the home because I have a nurse who is qualified. Well, since that is the case, I was allowed to be put back on the list. But all of this could have been explained if they would have called me a year ago when they took him off... Apparently, they had tried calling my phone "many" times but I never returned phone calls or answered... Yes, I screen my calls but all she had to do (IF she called) was Leave a message and I would have called right back!!! This is just a joke to me!!! My case worker will have an ear full when she gets back Monday!!

Anywho, I tried calling the Dothan office to see if we were still on the list and if they even offer the respid care. And she never gave me an answer... so I am wondering if the same thing happened there! She is calling me back Monday... and that will be one phone call that I am ready to get!

I guess my problem is that people treat me like I asked to be in this position. Like it is our fault that we want to work and want to better ourselves. I just don't get it! The nation is in enough of a money crunch and yet Medicaid people tell us to get a divorce to qualify for everything. WE DON'T WANT EVERYTHING... We want what BAKER deserves... and we want to continue our lives without worrying about whether or not we are going to loose his insurance because of us trying to work and pay our bills.

Please excuse my ranting and raving... I just am at a loss and don't have a clue where else to turn. Do we move to Birmingham and leave everything that we know and everyone that we love just so the services that Baker deserves are offered? I don't know... Can you tell I am stressed???

On a plus side, Baker got a hair cut!!! YAY!!! He is looking so good!! Thanks Jackie!! Nice to have family come to the house and cut his hair!! Picture to come later!!!

"The pathway is broken, and the signs are unclear. I don't know the reason why You brought me here, but just because You love me the way that You do... then I will walk through the valley if You want me too!"